National Lupus Associations
or Federations
http://www.lupus.org
A superb site, very strong
on patient information. In particular, we like
the segment on ‘Current Information’.
The Lupus Foundation of America is the largest
organisation in the world dedicated to the improved
detection of lupus through increased awareness,
alleviation of suffering through service and support,
and ultimately, the eradication of lupus through
research.
http://www.arthritis.org
This excellent site of the
American Arthritis Foundation has a useful search
facility. There is a wealth of education material.
It’s resource
room may be useful for people hungry
to know more about different aspects of arthritis
and lupus.
http://www.arthritis.org/resources/arthritistoday/Default.asp
The homepage of Arthritis
Today, the bimonthly publication of the Arthritis
Foundation. You may read articles from it on the
Net for free!
http://www.lupuscanada.org/index.html
This is the web site of
the Lupus Canada, a national voluntary organisation.
It has a good write-up of the disease, and has
a strong collection of articles about various
aspects of SLE. The Primer of Immunology is very
fun to read.
Research
http://omrf.ouhsc.edu/lupus/Frames.htm
Lupus Multiplex Registry
& Repository (LMRR), sponsored by the National
Institute of Arthritis, Musculoskeletal and Skin
Diseases maintains information on families with
two of more of their members who are suffering
from SLE. Its aim is to help researchers discover
the gene for lupus to help find new and better
treatments for the disease.
Patient education about
and around lupus
http://www.quackwatch.com
Billed as "Your Guide
to Health Fraud, Quackery, and Intelligent Decisions",
this is a wonderful collection of articles that
your sinseh or health food dealer would not want
you to read! There is information on acupuncture,
health supplements and traditional medicine. Before
you try a special ‘cure’ for SLE,
read about it first and make a more informed decision.
http://www.wellnessbooks.com/lupus/
Amazon Books stocks books
on SLE that you can purchase online.
http://www.njc.org/medfacts/systemic.html
National Jewish Medical
and Research Center, one of the most well-known
hospital in US, and is devoted to treating and
studying respiratory, allergic and immune system
diseases, including lupus. This is its information
page on SLE.
Links to links
http://www.mtio.com/lupus/l5index.htm
A superb webpage with hundreds
of lupus-related sites. You can spend hours surfing
the links here.
About
Lupus Erythematosus
Disabilities Access in the
UK
Lupus Research Institure
The Lupus Research Institute (LRI) is the nation’s only nonprofit organization solely dedicated to novel research in lupus.
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