National Lupus Associations or Federations
Lupus Foundation of America. A superb site, very strong on patient information. In particular, we like the segment on ‘Current Information’. The Lupus Foundation of America is the largest organisation in the world dedicated to the improved detection of lupus through increased awareness, alleviation of suffering through service and support, and ultimately, the eradication of lupus through research.
www.lupus.org
American Arthritis Foundation. This excellent site has a useful search facility and a wealth of education material. Its resource room may be useful for people hungry to know more about different aspects of arthritis and lupus.
www.arthritis.org
Arthritis Today. It is the bimonthly publication of the Arthritis Foundation. You may read articles from it on the Net for free!
www.arthritis.org/resources/arthritistoday/Default.asp
Lupus Canada. It is the national voluntary organisation from Canada which has a good write-up of the disease, and has a strong collection of articles about various aspects of SLE. The Primer of Immunology is very fun to read.
www.lupuscanada.org/index.html
The Lupus Research Institute (LRI) is Amercia’s only non-profit organization solely dedicated to novel research in lupus.
www.lupusresearchinstitute.org/
Research
Lupus Multiplex Registry & Repository (LMRR), sponsored by the National Institute of Arthritis, Musculoskeletal and Skin Diseases maintains information on families with two of more of their members who are suffering from SLE. Its aim is to help researchers discover the gene for lupus to help find new and better treatments for the disease.
http://omrf.ouhsc.edu/lupus/Frames.htm
Patient education about and around lupus
Quackwatch. Billed as “Your Guide to Health Fraud, Quackery, and Intelligent Decisions”, this is a wonderful collection of articles that your sinseh or health food dealer would not want you to read! There is information on acupuncture, health supplements and traditional medicine. Before you try a special ‘cure’ for SLE, read about it first and make a more informed decision.
www.quackwatch.com
